Support Groups
These support groups are for people with Parkinson’s and their caregivers. Each support group is facilitated by a peer, care partner, or health professional. The format of each support group varies, but many have monthly speakers who speak about topics such as nutrition, exercise, physical therapy, and voice therapy.
If you are interested in starting a support group in your area, please contact Susan Callison, the Program Coordinator at 515-782-4386 or apdaiowa@apdaparkinson.org.
If you are interested in a support group in Iowa, please click here and fill out a form to let us know you are interested and where you are located.
Young Onset Parkinson’s Disease Support Group
The Young Onset Parkinson’s Disease Support Group of Iowa is a group of people with young onset Parkinson’s and their caregivers who provide support to each other with the unique challenges that this conditions creates at a younger age.When someone who is 21-50 years old receives a diagnosis of Parkinson’s disease, it is referred to as early onset Parkinson’s disease, or young onset Parkinson’s disease. Learn more about young onset Parkinson’s disease.
Meeting Format: Meetings are held in-person around the Des Moines Metro, some meetings are teleconferenced to include members from around the state. Social gatherings are also planned on a regular basis.
Facebook Group: There is a private Facebook group available to reach other people with Young Onset Parkinson’s disease. Search ” Parkinson’s Young Onset Support Group Of Iowa”
Contact: Michelle Lorey at mlorey1968@gmail.com or Kim Roby kimbo6179@aol.com
| City/County | Leader/Phone | Location |
| Ackley/Hardin County | Alan Keninger alankeninger@hotmail.com 641-521-6433 | Ackley Civic Center 640 Main St. Ackley IA 50601 |
| Algona/Kossuth County | Greg Bradley executivedirector@algonaymca.org 515-295-7701 Exercise groups are also available | YMCA Algona, IA 50511 |
| Ames/Story County | Elizabeth Stegemoller esteg@iastate.edu 515-294-5966 http://www.neuromotorlab.com/ | First Baptist Church of Ames 200 Lynn Ave Ames, IA 50010 |
| Anamosa/Jones County | Allison Niedermann Allison.Niedermann@unitypoint.org 319-481-6195 Delay the Disease exercise group on hold due to covid | UnityPoint Health – Jones Regional Medical Center 1795 HWY 64 East Anamosa, IA 52205 |
| Ankeny/Polk County | On With Life Tammy Miller tammy.miller@onwithlife.org 515-289-9662 | 4th Thursday of the month, 5-6:30 pm In Person at On with Life, Ankeny and via Zoom |
| Ankeny/ Polk County | Colleen Miller colleen.miller@rockvalleypt.com 515-264-2559 Exercise groups are also available | Rock Valley Physical Therapy 1705 N Ankeny Blvd Suite A Ankeny, IA 50023 |
| Atlantic/Cass County | Jon Jordan JJordan@wesleylife.org 712-243-1850 Exercise groups are also available | Heritage House 1200 Brookridge Cir Atlantic, IA 50022 |
| Burlington/Des Moines County | Stephie Libben slibben@grhs.net | Great River Medical Center – Black Hawk Room 1221 Gear Avenue Burlington, IA 52655 |
| Carroll/Carroll County | Melissa Schultes mschultes@stanthonyhospital.org 712-794-5815 Exercise groups are also available | St. Anthony’s Regional Hospital 311 S. Clark Carroll, IA 51401 |
| Cascade/Dubuque County | Brenda Williams Cascade Area Parkinson’s Support – CAPS caps.52033@gmail.com 563-590-4364 https://www.facebook.com/CascadeAreaParkinsonSupport | Available by phone or email for support, currently not meeting in person due to covid Claddagh Court’s Lower Building 506 Sixth Avenue NW Cascade, IA |
| Cedar Rapids/Linn County
| Molly George mgeorge@heritage-communities.com 712-256-2741 A caregiver group also available. | (Currently meeting on Zoom) 260 33rd Ave SW, Suite G, Cedar Rapids IA 52405 |
| Centerville/Appanoose | Sherri Doggett and Malinda Hancox sherri.doggett@mercyoneiowa.org 641-437-3445 | Mercy Medical Center One St. Joseph’s Drive Centerville, IA 52544 4th Wed. 10:00 am |
| Charles City/Floyd County | Carol Quade carol@fiai.net 641-228-5053 | St. John’s Lutheran Church 300 South Main St Charles City, IA 50616 |
| Clinton/Clinton County | Lori Kennedy Lori.kennedy3@gmail.com 563-242-7502 | Zion Lutheran Church 439 3rd Avenue S Clinton, IA 52732 |
| Creston/Union County | Currently not meeting, | Southern Prairie Fitness |
| Davenport-Quad Cities/Scott County | Julie Norman-Geerts 563-271-7690 Caregiver groups are also available | Palmer Hills Retirement Center 2617 Maplecrest Rd Bettendorf, IA 52722 |
| Des Moines/Polk County | Valerie Stickle-Diehl VStickel-diehl@mercydesmoines.org 515-358-0002 | Currently not meeting due to Covid-19 |
| Des Moines/Polk County | Alee Phillips acphillips@wesleylife.org 515-271-6720 | Wesley Acres 3520 Grand Avenue Des Moines, Iowa, 50312 |
| Dubuque/Dubuque County | Gerald Osterhaus gerryosty@gmail.com judyosterhaus@gmail.com 563-580-1696 | Stonehill Caregiver Resource Center 3485 Windsor Ave Dubuque, IA 52001 |
| Dyersville/Dubuque County | Catherine Tegeler spikesina123@yahoo.com 563-875-7029 | Ellen Kennedy Living Center 1177 7th St., SW Dyersville, IA |
| Fairfield/Jefferson County | Michelle Boeding Kreuter MBoeding-Kreuter@jeffersoncountyhealthcenter.org 641-469-4295 | Jefferson County Health Center Conference Room C 2000 S. Main St. Fairfield, IA 52556 |
| Grinnell/Poweshiek County | Georgia Plumb plumbge@gmail.com 641-236-9570 | 615 Horseshoe Dr. St. E Grinnell, IA 50157 2:00 pm every 3rd Thursday |
| Guttenberg/Clayton County | Miranda Barnhart mbarnhart@abcmcorp.com 563-252-2288 | Eagle Ridge Assisted Living 1329 Acre St Guttenberg, IA 52052 |
| Guttenberg/Clayton County | Janet Hefel parkinsonclaytoncounty@gmail.com 563-252-3518 | Guttenberg Hospital 200 Main St Guttenberg, IA 52052 |
| Iowa City/Johnson County | Wanda Crombie w.crombie@mchsi.com 319-358-0306 or Ed Pierson e.pierson2325@gmail.com | Grand Living at Bridgewater 3 Russell Slade Boulevard Coralville, IA 52241 |
| Leon/Decatur County | Jen Barker jbarker@d-c-h.org 641-446-2229 link to information | Decatur County Hospital 1405 NW Church St Leon, Iowa 50144 |
| Marshalltown/ Marshall County | Dennis Eige ldeige@hotmail.com 641-753-8463 | Our Savior Lutheran Church 3001 S. 6th St. Marshalltown, IA 50158 |
| Muscatine/ Muscatine County | Pat and Wayne Corriell pat.corriell@gmail.com 563-649-2285 ———————————- John and Karen Schaub jschaub@machlink.com 563-263-1866 | Muscatine County Extension Office 1514 Isett Avenue Muscatine, IA |
| Newton/ Jasper County | Eloise Prater jeprater1607@gmail.com 641-791-1018 | Wesley Park Center 500 First Street North Newton, IA 50208 |
| Ottumwa/ Wapello County | Elstephany Guido guidoe14@gmail.com 641-684-6571 | Ottumwa YMCA 611 N Hancock St. Ottumwa, IA 52501 |
| Pella/ Marion County | Natasha Nikkel nnikkel@wesleylife.org 641-620-4269 | Hearthstone, A Ministry of WesleyLife 608 E 2nd St Pella, IA 50219 |
| Sioux Center/Sioux County | Brittney Moser Britney.Moser@siouxcenterhealthy.org 712-722-8125 Exercise groups available | Crown Pointe Estates 1400 7th Avenue SE Sioux Center, IA 51250 |
| Sioux City/ Woodbury County | Sally Reinert sreinert@evertek.net 402-987-3516 | Siouxland Center for Active Generation 313 Cook Street Sioux City, IA 51103 |
Spirit Lake/ Dickinson County | Sue Boettcher boettche@iastate.edu 712-336-3488 | Bedell Family YMCA 1900 41st St. Spirit Lake |
Storm Lake/Buena Vista County | Glen Schulz glennschulz1949@gmail.com 201-317-3318 | St. Mark Lutheran Church 1614 West 5th Street Storm Lake, IA 50588 |
Washington/Washington County | Julie Gentz fightpdbwg4121@gmail.com 319-461-1403 | Immanuel Lutheran Church 1226 E Washington St, Washington IA 52353 |
| Waukee/Dallas County | Megan DuBay mhoffman@stcroixhospice.com 515-229-8862 | Independence Village Community Room 1650 SE Holiday Crest Circle Waukee, IA 50263 |
| Waverly/Bremer County | Mary Ochoa mochoa@waverlyhealthcenter.org 319-352-4961 | Waverly Health Center 312 9th Street SW Waverly, IA 50677 |
| West Des Moines/ Polk County | Lynhon Stout lynhon19@gmail.com 515-965-9245 | Grand Living Tower Place 540 S. 51st Street West Des Moines, IA 515-850-5540 |
| West Des Moines/ Polk County | Young Onset Support Group Kim Roby kimbo6179@aol.com ———————————- Michelle Lorey mlorey1968@gmail.com | Please contact Kim Roby or Michelle Lorey for information about location and timings. Private Facebook Group- Search: Parkinson’s Young Onset Support Group of Iowa. |
| Urbandale/Polk County | Lewy Body Dementia Support Group Cookie Cranston 515-306-2925 | Currently meeting on Zoom and in person at Gloria Dei Lutheran Church Urbandale, IA 50322 |
| Bettendorf, IA/ Scott County | Lewy Body Dementia Support Group Marilyn Woelke, MAG, LMSW, CDS mewoelke@gmail.com 309-781-6462 | The Fountains Senior Living 3726 Thunder Ridge Rd. Bettendorf, IA |