Support Groups

Support Groups

These support groups are for people with Parkinson’s and their caregivers. Each support group is facilitated by a peer, care partner, or health professional. The format of each support group varies, but many have monthly speakers who speak about topics such as nutrition, exercise, physical therapy, and voice therapy.

If you are interested in starting a support group in your area, please contact Susan Callison, the Program Coordinator at 515-782-4386 or apdaiowa@apdaparkinson.org

If you are interested in a support group in Iowa, please click here and fill out a form to let us know you are interested and where you are located.

Young Onset Parkinson’s Disease Support Group

The Young Onset Parkinson’s Disease Support Group of Iowa is a group of people with young onset Parkinson’s and their caregivers who provide support to each other with the unique challenges that this conditions creates at a younger age.When someone who is 21-50 years old receives a diagnosis of Parkinson’s disease, it is referred to as early onset Parkinson’s disease, or young onset Parkinson’s disease. Learn more about young onset Parkinson’s disease.

Meeting Format: Meetings are held in-person around the Des Moines Metro, some meetings are teleconferenced to include members from around the state.  Social gatherings are also planned on a regular basis.

Facebook Group: There is a private Facebook group available to reach other people with Young Onset Parkinson’s disease. Search ” Parkinson’s Young Onset Support Group Of Iowa”

Contact: Michelle Lorey at mlorey1968@gmail.com or Kim Roby kimbo6179@aol.com


City/CountyLeader/PhoneLocation
Ackley/Hardin CountyAlan Keninger
alankeninger@hotmail.com
641-521-6433
Ackley Civic Center
640 Main St.
Ackley IA 50601
Algona/Kossuth CountyGreg Bradley
executivedirector@algonaymca.org
515-295-7701
Exercise groups are also available
YMCA
Algona, IA 50511
Ames/Story CountyElizabeth Stegemoller
esteg@iastate.edu
515-294-5966
http://www.neuromotorlab.com/
First Baptist Church of Ames
200 Lynn Ave
Ames, IA 50010
Anamosa/Jones CountyAllison Niedermann
Allison.Niedermann@unitypoint.org
319-481-6195
Delay the Disease exercise group on hold due to covid
UnityPoint Health – Jones Regional Medical Center
1795 HWY 64 East
Anamosa, IA 52205
Ankeny/Polk CountyOn With Life
Tammy Miller
tammy.miller@onwithlife.org
515-289-9662
4th Thursday of the month, 5-6:30 pm
In Person at On with Life, Ankeny and via Zoom
Ankeny/ Polk CountyColleen Miller
colleen.miller@rockvalleypt.com
515-264-2559
Exercise groups are also available
Rock Valley Physical Therapy
1705 N Ankeny Blvd Suite A
Ankeny, IA 50023
Atlantic/Cass CountyJon Jordan
JJordan@wesleylife.org
712-243-1850
Exercise groups are also available
Heritage House
1200 Brookridge Cir
Atlantic, IA 50022
Burlington/Des Moines County Stephie Libben
slibben@grhs.net
Great River Medical Center – Black Hawk Room
1221 Gear Avenue
Burlington, IA 52655
Carroll/Carroll CountyMelissa Schultes
mschultes@stanthonyhospital.org
712-794-5815
Exercise groups are also available
St. Anthony’s Regional Hospital
311 S. Clark
Carroll, IA 51401
Cascade/Dubuque CountyBrenda Williams Cascade Area Parkinson’s Support – CAPS
caps.52033@gmail.com
563-590-4364
https://www.facebook.com/CascadeAreaParkinsonSupport  
Available by phone or email for support, currently not meeting in person due to covid
Claddagh Court’s Lower Building
506 Sixth Avenue NW
Cascade, IA
Cedar Rapids/Linn County

 

Molly George
mgeorge@heritage-communities.com
712-256-2741
A caregiver group also available.
(Currently meeting on Zoom)
260 33rd Ave SW, Suite G, Cedar Rapids IA 52405
Centerville/AppanooseSherri Doggett and Malinda Hancox
sherri.doggett@mercyoneiowa.org
641-437-3445
Mercy Medical Center
One St. Joseph’s Drive
Centerville, IA 52544
4th Wed. 10:00 am
Charles City/Floyd CountyCarol Quade
carol@fiai.net
641-228-5053
St. John’s Lutheran Church
300 South Main St
Charles City, IA 50616
Clinton/Clinton CountyLori Kennedy
Lori.kennedy3@gmail.com
563-242-7502
Zion Lutheran Church
439 3rd Avenue S
Clinton, IA 52732
Creston/Union CountyCurrently not meeting,Southern Prairie Fitness
Davenport-Quad Cities/Scott County
Julie Norman-Geerts
563-271-7690
Caregiver groups are also available
Palmer Hills Retirement Center
2617 Maplecrest Rd
Bettendorf, IA 52722
Dubuque/Dubuque CountyGerald Osterhaus
judyosterhaus@gmail.com
563-583-7827
Finley Hospital
Woodward Auditorium
350 N Grandview Ave
Dubuque, IA 52001
Dyersville/Dubuque CountyCatherine Tegeler
spikesina123@yahoo.com
563-875-7029
Ellen Kennedy Living Center
1177 7th St., SW
Dyersville, IA
Fairfield/Jefferson CountyMichelle Boeding Kreuter
MBoeding-Kreuter@jeffersoncountyhealthcenter.org
641-469-4295
Jefferson County Health Center Conference Room C
2000 S. Main St.
Fairfield, IA 52556
Grinnell/Poweshiek CountyGeorgia Plumb
plumbge@gmail.com
641-236-9570
615 Horseshoe Dr. St. E
Grinnell, IA 50157
2:00 pm every 3rd Thursday
Guttenberg/
Clayton County
Miranda Barnhart
mbarnhart@abcmcorp.com
563-252-2288
Eagle Ridge Assisted Living
1329 Acre St
Guttenberg, IA 52052
Guttenberg/
Clayton County
Janet Hefel
parkinsonclaytoncounty@gmail.com
563-252-3518
Guttenberg Hospital
200 Main St
Guttenberg, IA 52052
Iowa City/
Johnson County
Gloria Drapac gloria.drapac@gmail.com 319-621-5224

 or Angie Longou angie@angielongou.com 319-631-2385

Grand Living at Bridgewater
3 Russell Slade Boulevard
Coralville, IA 52241
Leon/Decatur CountyJen Barker
jbarker@d-c-h.org
641-446-2229
link to information
Decatur County Hospital
1405 NW Church St
Leon, Iowa 50144
Marshalltown/ Marshall CountyLois Eige
  ljeige@gmail.com
641-751-9510
Our Savior Lutheran Church
3001 S. 6th St.
Marshalltown, IA 50158
Muscatine/
Muscatine County
Pat and Wayne Corriell
pat.corriell@gmail.com
319-321-6311
Mike and Jayne TeStrake testrake@machlink.com
563-299-9767
Wesley Family Live Center
114 W 4th St.
Muscatine, IA
Newton/
Jasper County
Eloise Prater
jeprater1607@gmail.com
641-791-1018
Wesley Park Center
500 First Street North
Newton, IA 50208
Osceola/
Clarke County
Tyler Patterson
tpatterson@clarkehosp.org
Clarke County Hospital
800 S Fillmore St
Osceola, IA 50213
2nd Wednesday of every month – Starts in August 2024
Ottumwa/
Wapello County
Elstephany Guido
guidoe14@gmail.com
641-684-6571
Ottumwa YMCA
611 N Hancock St.
Ottumwa, IA 52501
Pella/ Marion CountyNatasha Nikkel
nnikkel@wesleylife.org
641-620-4269
Hearthstone, A Ministry of WesleyLife
608 E 2nd St
Pella, IA 50219
Sioux Center/Sioux CountyBrittney Moser
Britney.Moser@siouxcenterhealthy.org
712-722-8125
Exercise groups available
Crown Pointe Estates
1400 7th Avenue SE
Sioux Center, IA 51250
Sioux City/
Woodbury County  
Sally Reinert
sreinert@evertek.net
402-987-3516
Siouxland Center for Active Generation
313 Cook Street
Sioux City, IA 51103

Spirit Lake/
Dickinson County
Sue Boettcher
boettche@iastate.edu
712-336-3488
Bedell Family YMCA
1900 41st St. Spirit Lake

Storm Lake/Buena Vista County
Glen Schulz
glennschulz1949@gmail.com
201-317-3318
St. Mark Lutheran Church
1614 West 5th Street
Storm Lake, IA 50588

Washington/Washington County
Julie Gentz
fightpdbwg4121@gmail.com
319-461-1403
Immanuel Lutheran Church
1226 E Washington St, Washington IA 52353
Waukee/Dallas CountyLaura McPike
apdaiowa@apdaparkinson.org
515-478-4653
 Independence Village Community Room
1650 SE Holiday Crest Circle
Waukee, IA 50263
Waverly/Bremer CountyMary Ochoa
mochoa@waverlyhealthcenter.org
319-352-4961
Waverly Health Center
312 9th Street SW
Waverly, IA 50677
Webster CIty/ Webster CountyDiana Rafka, OT
drafka@21stcenturyrehab.com
——————————–
Laurie Andrews, DPD
landrews@21stcenturyrehab.com
515-832-7735
Van Diest Medical Center Conference Room
2350 Hospital Dr.
Webster City, Iowa 50595
(enter through the West entrance)
West Des Moines/
Polk County
Lynhon Stout
lynhon19@gmail.com
515-965-9245
Grand Living Tower Place
540 S. 51st Street
West Des Moines, IA
515-850-5540
West Des Moines/
Polk County
Young Onset Support Group
Kim Roby
kimbo6179@aol.com
———————————-
Michelle Lorey
mlorey1968@gmail.com
Please contact Kim Roby or Michelle Lorey for information about location and timings.

Private Facebook Group- Search: Parkinson’s Young Onset Support Group of Iowa.

Urbandale/Polk CountyLewy Body Dementia Support Group
Cookie Cranston
515-306-2925
Currently meeting on Zoom and in person at
Gloria Dei Lutheran Church
Urbandale, IA 50322
 Bettendorf, IA/
Scott County
Lewy Body Dementia Support Group
Marilyn Woelke, MAG, LMSW, CDS
mewoelke@gmail.com
309-781-6462
The Fountains Senior Living
3726 Thunder Ridge Rd.
Bettendorf, IA