Education & Support

Education and Support

Through a nationwide network of local Chapters, we uniquely deliver education, support, and patient services to Americans with Parkinson’s and their families each day.

Information Resources from APDA

Local Resources & Support Groups

APDA has raised and invested more than $170 million to provide outstanding patient services and educational programs, elevate public awareness about the disease, and support research designed to unlock the mysteries of Parkinson’s disease and ultimately put an end to this disease.

1,700+ support groups served 74,000 individuals with Parkinson’s disease and their family members
5,500 people with Parkinson’s disease and their care partners attended Educational symposia on living well with the disease
770 exercise groups attended by more than 21,000 participants to improve Parkinson’s disease symptoms and lessen the impact of the disease

More Information Resources

Including those for specialized populations

In addition to focusing on how to best serve our constituents and expand our reach across the general population, APDA provides the following unique resources for specialized patient populations.

 


For Care Partners

When one person in a couple or family is affected by Parkinson’s disease, the other family members live with it as well. To keep your care partnering relationship healthy and balanced, it’s important that the care partner finds time to take a break from caregiver duties, has some outside interests, and has others they can turn to for support and resource information.

Go to Caregiver Resources

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Young Onset Parkinson’s Disease

For those who have been diagnosed under the age of 50, APDA provides resources and information to help younger people with Parkinson’s Disease live active and productive lives. Our Early/Young Onset section offers a wide range of resource links and discusses issues that are particularly relevant to people with young onset Parkinson’s disease, such as ongoing employment, parenting, and planning for the near and distant future.

Learn More about YOPD

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Veterans with PD

In 2017, APDA published Helping Those Who Serve: Parkinson’s Disease Information for Veterans Community. This manual offers general information about Parkinson’s diagnosis, symptoms and treatment, tips for coping with disease progression and support for care partners. It also provides step by step directions on how to access the Veterans’ Affairs (VA) system and receive care from the VA PADRECC (Parkinson’s Disease Research, Education, and Clinical Centers) and consortium centers across the country. The manual is accessible on the page linked below, and in print.

See Our Veteran Resources

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APDA National Rehabilitation Resource Center

More Information

Boston University Center for Neurorehabilitation: Sargent College
635 Commonwealth Avenue, 6th Floor
Boston, Massachusetts 02215
Exercise Helpline: 888-606-1688
Email: rehab@bu.edu

APDA’s National Rehabilitation Resource Center for Parkinson’s disease is located at the Boston University Sargent College Center for Neurorehabilitation. The Center is available to medical professionals and people with Parkinson’s Disease nationwide, serving as a central resource for information about Parkinson’s-related rehabilitation and exercise.

Through the Center’s toll-free helpline (888-606-1688), callers can speak with a licensed physical therapist about PD-appropriate exercise and relevant programs in their area. Engaging in regular physical activity is an important way to maintain mobility in PD.

Learn More About Rehab

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Recursos En Español for Spanish Speakers

Understanding the critical need to provide support to diverse Parkinson’s populations, APDA increased efforts to provide Spanish educational materials. To date, nine APDA brochures and supplements have been written in Spanish and more continue to be developed. Additionally, APDA offers access to live phone support in Spanish through the 800-223-2732 toll free help line. Finally, an “En Español” section has been added to the APDA website to ensure that the Spanish-speaking community can get the important care and support they need.

En Español

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First Responders Parkinson’s Awareness Training Program

This 1-2 hour web-based course with instructional videos intended to provide overall education about Parkinson’s disease and information on protocols for the first responder when interacting with a person who shows the signs of Parkinson’s.  The first responder’s training program has been posted on state training websites in New Jersey, Pennsylvania, New Hampshire, and South Carolina. Other states will be adding the program in the coming year; CEUs may be available through these states’ websites. A non-CEU version of the program is available on the APDA website via the link below.

This program meets the educational goals in Section 4b4 of the New Jersey Parkinson’s Disease Public Awareness and Education Act (A-2576.) signed into New Jersey state law in December 2014.

Take the Course Online Now

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The Parkinson Community’s Online Forum

An APDA collaboration with SMART PATIENTS

Helping people with Parkinson’s and their care partners connect with each other is the reason the we’ve partnered with Smart Patients to create a new online discussion forum for patients and their loved ones dealing with Parkinson’s Disease. Members in this online forum share help, advice and information about treatments, symptoms and side effects.

You can join the online forum for free to share, interact, and learn from each other in a safe, supportive environment.

Read Our Press Release

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