PSN Cape Cod, APDA Branch Join our Community APDA Parkinson Support Network of Cape Cod Branch The Parkinson Support Network of Cape Cod (PSN), a Branch of the APDA MA Chapter, was founded in 2009 by Joyce Ginouves after her husband Paul was diagnosed with Parkinson’s. She recognized the need for additional services for the over one thousand families living with Parkinson’s on Cape Cod. Over the years, she has assembled an alliance of consumers, health and human service providers, and organizations committed to supporting people living with Parkinson’s disease and their families/care partners on Cape Cod. Since its beginnings, the PSN/APDA has coordinated educational seminars, support services, and specialized exercise and wellness programs. The Cape Cod PSN became a Branch of the American Parkinson Disease Association Massachusetts Chapter in 2015. For more information about any of our programs and services, please call the American Parkinson Disease Association Information and Referral Center at 800-651-8466. Updates for the PD Community As a precaution and in light of recent recommendations regarding the coronavirus (COVID-19), a number of scheduled events and meetings have been cancelled or postponed. Please be sure to reach out to the program contact if you are unsure about whether or not a meeting has been cancelled. For more information on COVID-19 and the PD Community, click here. You can also feel free to reach out to the APDA Information and Referral Center at 800-651-8466 with any questions. Upcoming Cape Events APDA MA Virtual Education Series: Bringing Information to You at Home Next Session: Understanding Blood Pressure Fluctuations in Parkinson’s Tuesday, August 10, 2021 Join the American Parkinson Disease Association MA for the virtual educational program “Understanding Blood Pressure Fluctuations in Parkinson’s.” This program will be presented by Anindita Deb, MD, Movement Disorder Specialist from the University of Massachusetts Memorial Medical Center in Worcester, MA. Dr. Deb will discuss how to manage blood pressure changes in Parkinson’s. Click here to register Click here to see previous sessions APDA Virtual Care Partners Group Second Monthly Session Beginning Thursday, September 9, 2021 The ongoing monthly virtual support group for care partners facilitated by Sarah Singer, LICSW, is adding a second session each month. In addition to the meeting on the fourth Wednesday of the month, the group will also meet on the second Thursday of each month in the evenings from 6:30 – 7:30 PM. Once registered, care partners can drop in to any group meeting they wish. Click here to learn more and register APDA 2021 Cape Cod Optimism Walk Sunday, September 19, 2021 Join us for the first LIVE Optimism Walk since 2019! This year’s Cape Walk will take place at Falmouth High School, and pre-registration is strongly encouraged. We can’t wait to see you! Click here to visit the Walk website APDA MA Virtual Education Series: Bringing Information to You at Home October Session: Sleep Matters: A Review of Sleep Issues in Parkinson’s Tuesday, October 12, 2021 Join the American Parkinson Disease Association MA for the virtual educational program “Sleep Matters: A Review of Sleep Issues in Parkinson’s.” This program will be presented by Okeanis Vaou, MD, Director of Movement Disorders and Deep Brain Stimulation at St. Elizabeth’s Medical Center. Dr. Vaou will give an overview of sleep problems associated with Parkinson’s Click here to register Click here to see previous sessions APDA Let’s Keep Moving Fitness Series The APDA National Rehabilitation Resource Center for Parkinson’s Disease at Boston University hosts Let’s Keep Moving seminars featuring tips on many different aspects of staying fit while at home. See previously recorded sessions APDA Dr. Gilbert Hosts Q&A Series Dr. Rebecca Gilbert hosts these informative Q&A sessions with a series of experts via Zoom. Topics include an intro to telemedicine, medication management & COVID-19, and more. Click here to see previous sessions Educational Programming Each year, the PSN/APDA Branch provides educational programming specifically for the Cape Parkinson’s community. These programs are designed to educate people with Parkinson’s, care partners, and interested community members about varying topics related to Parkinson’s. Past programming has included panels on wellness programming, seminars on non-motor symptoms of Parkinson’s, support for care partners, and more. The Program Committee for the Parkinson Support Network/APDA Board determines annual programming at the beginning of each year. Click below to see the full schedule for the current year. Educational Programs APDA MA Virtual Education Series: Bringing Information to You at Home Next Session: Understanding Blood Pressure Fluctuations in Parkinson’s Tuesday, August 10, 2021 Join the American Parkinson Disease Association MA for the virtual educational program “Understanding Blood Pressure Fluctuations in Parkinson’s.” This program will be presented by Anindita Deb, MD, Movement Disorder Specialist from the University of Massachusetts Memorial Medical Center in Worcester, MA. Dr. Deb will discuss how to manage blood pressure changes in Parkinson’s. Click here to register Click here to see previous sessions APDA MA Virtual Education Series: Bringing Information to You at Home October Session: Sleep Matters: A Review of Sleep Issues in Parkinson’s Tuesday, October 12, 2021 Join the American Parkinson Disease Association MA for the virtual educational program “Sleep Matters: A Review of Sleep Issues in Parkinson’s.” This program will be presented by Okeanis Vaou, MD, Director of Movement Disorders and Deep Brain Stimulation at St. Elizabeth’s Medical Center. Dr. Vaou will give an overview of sleep problems associated with Parkinson’s Click here to register Click here to see previous sessions Psychosocial Support Support groups are critical to people whose lives are affected by Parkinson’s disease, providing a forum to come together to seek information, voice concerns, and share experiences. The meetings provide an opportunity to express feelings and discussion common issues and what solutions others have discovered. Meeting with others who understand the unique needs of individuals with PD and family members can lessen feelings of isolation and validate one’s experience—you are not alone! Support Groups Chatham / Harwich / Brewster, MA This support group is currently not meeting due to COVID 19. More information to follow. Saint Christopher’s Episcopal Church, 625 Main Street, Chatham, MA 02633 Meeting Time: 3rd Wednesday of the month, 10-11 AM Contact: Betty Magnusson Phone: 508-945-1106 Email: magnulbch@gmail.com Martha’s Vineyard / West Tisbury, MA / Vineyard Isle Parkinsonians (VIPs) This group will meet via Zoom for the foreseeable future. This group also meets for a socially distanced walk outside; please contact facilitator Bethany for more information. The Up-Island Council on Aging (Howes House), 1042A State Road, West Tisbury, MA 02575 Meeting Time: 2nd Monday of the month, 10:30-11:30 AM Contact: Bethany Hammond Phone: (508) 693-2896 Email: coa-outreach@westtisbury-ma.gov Contact: Lila Fischer, RN Email: lfischer@gmail.com Mashpee, MA This support group is currently meeting via Zoom shortly. Contact the facilitator for more information. Mashpee Council on Aging, 26 Frank E. Hicks Drive, Mashpee, MA 02649 Meeting Time: 2nd Thursday of the month, 10-11:30 AM Contact: Jeanne Jackson Phone: 508-367-4267 Email: jahjackson@comcast.net Healthy Mindset Parkinson’s Program The Healthy Mindset Parkinson’s Disease (PD) Program is designed to facilitate greater understanding, support overall adjustment and enhance quality of life for persons with PD and their partners. The program seeks to educate participants about the common psychosocial aspects of PD an d to promote healthy mindset strategies that enhance well-being, even in the face of illness. Healthy mindset, offered in collaboration with the Parkinson’s Center for Comprehensive Care at Spaulding Cape Cod, is a unique program for patients and their partners. Click here to see a flyer with more information. Location: Spaulding Rehabilitation Hospital Cape Cod, 311 Service Road, East Sandwich, MA 02537 Contact: For registration, schedule, and more call 508-833-4141 Arts and Movement Programs on the Cape Cape Cod is home to many programs specifically designed for the person with Parkinson’s and his or her family members. Being active improves and maintains strength, flexibility, mobility, and coordination. Several different modalities are currently offered throughout the country and researchers are actively studying the effects of structured exercise programs on functionality and quality of life indicators. As a service to the community and with permission of the sponsoring individual or agency, the PSN/ APDA Branch provides an updated list arts and movement programs. Click on the links below for more information on each program. Specific information on whether you or a loved one can safely participate should be obtained by your health care provider in collaboration with the sponsoring agency. 2021 Update: As a precaution regarding the coronavirus (COVID-19), some scheduled programs are still postponed. Please be sure to reach out to the program contact if you are unsure about whether or not a meeting will happen. For more information on COVID-19 and the PD Community, click here. You can also feel free to reach out to the APDA Information and Referral Center at 800-651-8466 with any questions. PSN/APDA Sponsored Programming Hyannis – Sing for Joy Location: Barnstable Adult Community Center, 825 Falmouth Road, Hyannis, MA 02601 Dates & Times: Mondays, 10:30 – 11:30 AM Contact: 508-362-2772 or mtheodore@capesymphony.org, or register online here This group is supported by the American Parkinson Disease Association MA Chapter Dance Classes **Please note: These groups are currently not meeting due to COVID. Please contact the program providers for more information.** Barnstable – Dance Program at Barnstable Senior Center Location: Barnstable Senior Center, 825 Falmouth Road, Hyannis, MA 02601 Dates: Fridays, 11 AM – 12 PM Contact: Elaine at 774-722-5554 Orleans – Dance for Joy Dates: 1st, 2nd, and 4th Wednesday of the Month; 1:30 PM Location: Orleans Council on Aging, 150 Rock Harbor Road, Orleans, MA 02653 Contact: Dorothy 508-432-3062 Exercise Classes Barnstable – Pedaling for Parkinsons The YMCA Cape Cod hosts a Pedaling for Parkinson’s program. The program is free for YMCA members, $100 for non-members. The class meets 3 times a week. Location: YMCA Cape Cod, 2245 Iyannough Road, West Barnstable, MA 02668 Contact: Shannon Mundy, 508-362-6500 Chatham – High-Intensity Training for PD (HIT-PD) HIT-PD offers those in the early stages of PD an intensive training program to reduce the impact of symptoms and possibly slow the progression of disease. HIT-PD is based on emerging research on the importance of early exercise and physical therapy in preventing secondary complications of PD. Exercises focus on aerobic fitness, quality of gait, muscle strength, mood, fatigue and cognition. This program is supported by a grant from the American Parkinson Disease Association Massachusetts Chapter. Contact Heather Merrill for current dates and times. Location: Body Strong Fitness, 11 Chicks Way, South Chatham, MA 02659 Contact: Heather Merrill, MSPT; 508-240-7203 Hyannis – Rock Steady Boxing with Forte Fitness Dates & Time: Rock Steady Boxing classes are offered Monday through Friday, multiple times each day. Contact the gym for more information. Location: 350 Kidd’s Hill Road, Hyannis, MA 02601 Contact: Meredith Ruff, (508) 776-7349 or fortefitness@rsbaffiliate.com Rock Steady Boxing with Spaulding Rehabilitation Hospital Cape Cod Free screening required prior to joining this program. Contact: 508-833-4197 Spaulding Cape Cod Virtually Accessible Yoga Date & Time: Mondays, January 4th – February 8th; 10 – 11 AM Location: Online via Zoom Contact: Email dnardi@mghihp.edu for questions and to learn more about the program, or call Danielle at (508) 771-1300 to register. Wareham – Parkinson Recovery Exercise Program The Gleason Family YMCA offers a Parkinson Recovery exercise program with Instructor John on Mondays from 12:00 – 1:00 PM. The class costs $8 per session. For more information, please call 508-295-9622. Dates & Time: Mondays, 12:00 – 1:00 PM Location: Gleason Family YMCA, 33 Charge Pond Road, Wareham, MA 02571 Community Wellness Programs, Speech Therapy, & Physical Therapy Community Wellness Physical Therapy Programs for individuals with Parkinson’s disease are now offered in several Cape communities. The Wellness Program is designed to help individuals with Parkinson’s disease living in the community learn to manage their health more effectively in order to improve day-to-day functioning and quality of life. Under the guidance of licensed physical, occupational, and speech therapists, participants will learn exercises and a problem solving approaches to managing daily mobility, self-care, and communication issues which often interfere with function and quality of life. These programs have been developed from a model established at Boston University Sargent College of Health and Rehabilitation Sciences. Healthcare professionals from interested agencies collaborate and receive intensive training by staff from Boston University’s Sargent College and the BU Department of Neurology. These initiatives are supported in part by the American Parkinson Disease Association. LSVT BIG® and LSVT LOUD® are intensive therapy programs administered to an individual with Parkinson’s by a rehabilitation specialist ( PT, OT, Speech). To learn more about these programs, visit http://www.lsvtglobal.com/. Wellness Programs, Speech Therapy and Physical Therapy Dennis – Community Wellness Program at Dennis Council on Aging Location: Dennis Council on Aging, 1045 MA 134, South Dennis, MA 02660 Contact: 508-771-1300 Duxbury – Community Wellness Program *The Community Wellness program in Duxbury has moved to Hanover, MA Hanover – Community Wellness Program Location: Emilson YMCA, 75 Mill Street, Hanover, MA 02339 Contact: 781-829-8585 or email Emily Hubert at ehubert@ssymca.org Harwich – Community Wellness Program at Harwich Community Center Dates & Times: Call the number below for current dates and times. Location: Harwich Community Center, 29 Oak Street, Harwich, MA 02645 Contact: 508-240-7203 Hyannis, MA – LSVT® BIG and LOUD at Pavilion Rehabilitation and Nursing Center Location: 876 Falmouth Road, Hyannis, MA 02601 Contact: Cindy Parker-Marney, 508-775-6663 Orleans, MA- Spaulding Outpatient Center Orleans LSVT LOUD® program LSVT BIG® program Vibrant Voices – For individuals who have completed LSVT® Please call 508-240-7203 for more information. Plymouth, MA- Spaulding Outpatient Center Plymouth LSVT BIG® program Please call 508-927-7424 for more information. Sandwich, MA – Spaulding Rehabilitation Hospital Outpatient Center Sandwich LSVT LOUD® program Please call 508-833-4141 for more information. Raise Your Voice Raise Your Voice is a speech and voice training program that focuses on breathing, volume and articulation for those with PD who are experiencing changes in speech and voice. Classes include education, daily exercises and strategies for self-management. Prior experience with LSVT® is not necessary. Please call 508-833-4078 to register Sandwich – Community Wellness Program at Spaulding Rehabilitation Hospital Cape Cod Dates: For a list of program dates, please contact Spaulding. Location: Spaulding Rehabilitation Hospital Cape Cod, 311 Service Road, Sandwich, MA 02537 Contact: 508-833-4078 Yarmouth, MA – Spaulding Outpatient Center Yarmouth LSVT BIG® program Please call 508-771-1300 for more information. Learn More About the Parkinson Support Network/APDA Leadership PSN/APDA Branch Leadership Leadership Council Marleen Spengler, MBA, RN-BC,CMC Seth Stadfeld Carole Stasiowski Cathi A. Thomas MS, RN, CNRN- Advisor Jay Zavala Joyce Ginouves, Founding Member Advisory Council John S. Allen, PhD Marie Saint-Hilaire, MD, FRCPC
