Young Onset - Legal, Planning & Support

DivorceSource.com - 1-800-680-9052

DivorceSource.com provides online tools that can help answer questions and provide support for those going through the divorce process. Find local lawyers or mediators, view divorce laws by state, get organized with checklists and worksheets, and learn more with their library of online articles. Please note that they do not provide legal council over the phone, but can help you to navigate their website and online tools if you call their hotline.

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The National Healthy Marriage Resource Center - (866) 916-4672

Funded by the Department of Health & Human Services, this organization provides information about and resources for maintaining a healthy marriage/relationship. Search the site for keywords: "chronic illness," for specific articles and resources related to the emotional and financial strain a partner's illness can have on a relationship.

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Pine Tree Legal Assistance - (207) 774-8211

Pine Tree Legal Assistance provides a state-by-state listing of local agencies offering low cost, or free, legal assistance to eligible clients. Many listed organizations are subject to restrictions about the types of cases they represent, so it is best to contact them with your circumstances to see if you meet the requirements for assistance.

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Lawhelp.org

Lawhelp.org was created for people living on low incomes to provide them with education about the divorce process and can provide a listing for an attorney or other professionals.

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Divorce Care - (800) 489-7778

Divorce Care is a resource for those looking to find a divorce recovery support group. They have listings for thousands of recovery groups for adults as well as groups for children of divorce. This Web site is not necessarily aimed at those with a chronic illness, but to a more general audience.


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American Association for Marriage and Family Therapy - (703) 838-9808

The American Association for Marriage and Family Therapy is the professional organization of Marriage and Family Therapists. Their Web site provides information about how a chronic illness can impact the family and includes suggested interventions. Visitors to this site can search for a licensed provider in your state or ZIP Code.

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National Academy of Elder Law Attorneys (NAELA) - (703) 942-5711

The National Academy of Elder lay Attorneys is a not-for-profit association that represents lawyers and bar organizations. NAELA provides education, information and networking assistance to those who provide legal services to older adults and other special needs populations including people with disabilities. Visit the site's "Locate an Elder Law Attorney," to find someone in your area who is able to your specific legal and planning needs.

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Financial Planning Association - (800) 322-4237

The Financial Planning Association Web site provides a wide variety of resources (articles, worksheets, guides, webinars, etc.) designed to help individuals understand the importance of financial planning and the value of obtaining sound advice from a financial planning professional. Special sections related to saving for college, estate planning, and long-term care for loved ones are also provided.

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Family Caregiver Alliance (FCA) - (800) 445-8106

The Family Caregiver Alliance was the first community-based non-profit organization in the country to address the needs of families and friends providing long-term care at home. The FCA now provides programs at national, state, and local levels to sustain caregivers. They provide information on various caregiving issues, including legal matters and various health conditions.

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Next Step in Care

Next Step In Care provides user-friendly guides and checklists for Caregivers and Healthcare Provides on topics such as Becoming a Family Caregiver, Hospital Stay and Discharge Planning Options, Rehabilitation and Home Care. They also provide links to other available resources, a terms and definitions page for common medical terminology, and helpful articles.

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Dept. of Veterans Affairs: Caregiver Services - 1-855-260-3274

You may know that VA provides benefits and services for Veterans, but did you know that VA also has a number of services designed specifically to support you in your role as a Family Caregiver? VA values your commitment as a partner in our pledge to care for those who have "borne the battle," and we have several support and service options designed with you in mind. The programs are available both in and out of your home to help you care for the Veteran you love and for yourself.


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ARCH National Respite Network and Resource Center

The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs in the United States; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.

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Caring From a Distance - 202-895-9465

Caring From a Distance provides resources for those who are caring for aging parents or loved ones located in different cities or states.


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Caregiver Action Network - (202) 454-3970

There are many resources available to make sure that both you and your care recipient are living the best lives possible. Through these Caregiver Links, you will find a range of information to make your caregiving experience more successful.

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Well Spouse Association - (800) 838-0879

Well Spouse advocates for and addresses the needs of individuals caring for a chronically ill or disabled spouse/partner. They offer peer to peer support and educate healthcare professionals and the general public about the special challenges and issues "well" spouses face every day. Visitors to this Web site can search for a local support group as well as find links to other caregiving resources.

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The National Healthy Marriage Resource Center - (866) 916-4672

Funded by the Department of Health & Human Services, this organization provides information about and resources for maintaining a healthy marriage/relationship. Search the site for keywords: "chronic illness," for specific articles and resources related to the emotional and financial strain a partner's illness can have on a relationship.

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Lotsa Helping Hands

APDA has joined with Lotsa Helping Hands, a Web-based caregiver support service, to offer friends and family members an easy way of staying informed and coordinating care. Create a personalized on line Web page and keep track of who may be able to lend a hand and how.

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Family Caregiver Alliance (FCA) - (800) 445-8106

The Family Caregiver Alliance was the first community-based non-profit organization in the country to address the needs of families and friends providing long-term care at home. The FCA now provides programs at national, state, and local levels to sustain caregivers. They provide information on various caregiving issues, including legal matters and various health conditions.

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The Patient Advocate Foundation (PAF) - (800) 532-5274

Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit organization which provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to their diagnosis also assisted by doctors and healthcare attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

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Case Management Society of America - (501) 221-9068

This national association of case management professionals offers "Consumer" information about why and when a case manager could be used to coordinate care and services.

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TSA: Travelers with Disabilities and Medical Conditions - 1-866-289-9673

To ensure your security, all travelers are required to undergo screening at the checkpoint. You or your traveling companion may consult the TSA officer about the best way to relieve any concerns during the screening process. You may provide the officer with the TSA notification card or other medical documentation to describe your condition. If you have other questions or concerns about traveling with a disability please contact passenger support.

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National Mobility Equipment Dealers Association - (800) 833-0427

This organization is a non-profit trade association of mobility equipment dealers. They offer comprehensive advice about purchasing a modified, handicap accessible vehicle as well as helpful ideas about funding the purchase of such a vehicle.

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Easter Seals - (800) 659-6428

The Easter Seals nationwide "Project ACTION" toll-free helpline directs callers to transportation resources for the disabled person. Visit the Web site for a listing of Accessible Transportation Links.

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