Young Onset - Employment & Disability
SSA Guide to Working While Disabled - 1-800-772-1213
If you are getting disability benefits, but are interested in working, Social Security's work incentives and Ticket to Work programs may be right for you. Find out more about special rules and guidelines for everything from working while receiving SSDI to the appeals process to overpayment and many other disability-related concerns. View all available publications at:
Legal Aid Society: Employment Law Center - (415) 864-8848
Individuals with actual or perceived disabilities are particularly vulnerable to discrimination in employment. The law protects many people with disabilities, including people with mental health or other "hidden" disabilities, from employment-related discrimination. In addition, the law may require that an employer eliminate barriers for workers with disabilities and provide other reasonable accommodations that allow these workers to perform their jobs. The available fact sheets will help to answer your questions about state and federal employment laws, reasonable accommodation, Family Medical Leave and more.
The Chronic Illness Career Coach - (617) 969-1930
Rosalind Jaffe, known as the "Chronic Illness Career Coach," writes extensively about chronic illness and the workplace. Those who are unemployed or underemployed may want to consider adding their name to the "Back to Work" waiting list; a small program Rosalind maintains for those who are unable to afford her regular coaching fee. Visit the site's Blog for even more information about working with a chronic illness.
This Web site contains many disability-related resources across a wide range of topics including health, housing, technology, transportation and employment. Information about job/career planning, illness disclosure, accommodation and self-employment are just some of the employment categories covered. Visitors to this Web site can also search local job banks for employment opportunities by clicking "Employment" the "Jobs and Career Planning".
United States Department of Justice - (800) 514-0301
The US Department of Justice provides information about the Americans with Disabilities Act (ADA) through a toll-free ADA Information line. The service allows businesses, government offices, and individuals to call and ask questions about general or specific ADA requirements, including questions about the ADA Standards for Accessible Design.
Mediate.com - (541) 345-1629
Mediate.com serves as a bridge between professionals offering mediation services and people considering mediation services. Services offered include divorce, employment, and estate planning, among other subjects. You can search for a mediator by state or topic on this Web site.
Job Accommodation Network (JAN) - (800) 526-7234
The Job Accommodation Network is a service provided by the U.S. Department of Labor's Office of Disability Employment Policy. JAN's mission is to help retain disabled workers' employment by providing information on job accommodations. To search specifically for Parkinson's disease, search "By Disability" under the "A-Z of Disabilities and Accommodations" tab.
My Social Security - 1-800-772-1213
At each stage of your life, my Social Security is for you. Your personal online my Social Security account is a valuable source of information beginning in your working years and continuing throughout the time you receive Social Security benefits. Create an account to If you are currently receiving benefits, you can check your benefit and payment information and your earnings record. If you are still working, use this tool to estimate your retirement, disability, and survivors benefits.
Work at Home Jobs has been helping people find home-based employment opportunities since 2003. Visitors to this Web site can create a profile to post their resume and profile, network with other work from home professionals, and receive job email alerts. Although this Web site states their postings are researched and found to be legitimate, you should use caution when applying for postings and never apply for a position where you are required to pay up-front fees.
Social Security Administration - (800) 772-1213
This is the official Web site for the Social Security Administration and it contains a wealth of information about Social Security Disability Insurance including eligibility, disability application guidelines, denial and the reapplication process. The site provides answers to frequently asked questions about the SSDI application process in general as well as addressing Medicare and Medicaid eligibility. Disabled people can also access a listing of Vocational Rehabilitation agencies that provide career retraining which may facilitate a return to work.
This program is a subsidiary of the Social Security Administration's Ticket to Work Program. Anyone aged 18 to 64 that is receiving SSDI and/or SSI benefits are eligible to participate in this incentive. Clicking on the "Resources Map" and selecting your state will provide information about employment networks, work incentives planning and assistance programs, protection and advocacy programs, and vocational rehabilitation agencies.
CareerOneStop - (877) 348-0502
The CareerOneStop section of the US Department of Labor has information about training programs funded by the federal government. Certain individuals may qualify for Workforce Investment Act (WIA) training or other federal programs to learn skills which might be needed to begin a new type of work.
Parkinson's Action Network (PAN) - (800) 850-4726
PAN is the voice of the Parkinson's community on numerous public policy issues affecting research and an improved quality of life. Visit this Web site for updates on PD-related legislation of importance to various groups, including people with Parkinson's pursuing disability benefits and veterans with Agent Orange exposure.
National Organization of Social Security Claimants' Representatives - (800) 431-2804
The National Organization of Social Security Claimants' Representatives is an association of attorneys and other advocates who represent Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) claimants. They have a referral service for finding an attorney experienced in SSDI claims in your area.
Founder Jacques Chambers, CLU shares his in-depth knowledge of insurance, employee benefits, Social Security and Medicare with those who visit this Web site. Jacques practical is able to explain complicated topics in clear, understandable terms by breaking seemingly overwhelming tasks into smaller, easy-to-follow steps.
This Web site provides those who are pursuing SSDI with tips, suggestions, and "secrets" that may help them navigate the application and appeals process more successfully.
Allsup - (800) 854-1418
Allsup is a disability representation firm that provides assistance in filing for Social Security Disability Insurance (SSDI). Allsup also provides financial guidance and help with tax planning, managing healthcare costs and selecting Medicare options, in addition to offering many money management and planning calculators.
Just as seniors often benefit from home modification, many individuals with disabilities choose to remodel their homes for greater ease and access. In the case of older homes, these changes are often obligatory. While seniors might weigh the option of home improvement against moving into an assisted living facility or downsizing to a smaller place, disabled individuals of all ages may wish to purchase an older house. The costs to remodel such a home may prove more reasonable for an individual who intends to remain in the home for many years to come.