HOPE AND YOUNG ONSET PARKINSON’S DISEASE When you envision someone living with Parkinson’s disease, what comes to mind? Are they a rock climber? An American Ninja Warrior? A nurse? Or perhaps the parent of a young child? Probably not. What you might be surprised to learn is that people with Parkinson’s disease (PD) defy expectations […]
How John Became an Unlikely Celebrity When John Capone was first diagnosed with Parkinson’s disease (PD) at the young age of 39, he never imagined acting in a movie with A-list celebrities. The news of his diagnosis was tough to handle at first, and he quickly became overwhelmed by depression and anxiety. But this tough […]
Care Partner Tributes and Stories for Family Caregivers Month November is National Family Caregivers Month — a time to recognize and honor family care partners across the country. We all know how integral care partners are to each Parkinson’s disease (PD) journey and while they should be celebrated year-round, now is a great time to […]
LIFE WITHOUT LIMITS: ONE VETERAN’S STORY “I jumped out of a perfectly good airplane and free fell at 150 mph. I zip-lined at the Grand Canyon. I went paragliding off a 1,800-foot mountaintop and flew for over 20 minutes. I have walked over 5,220 miles.” These are just a few of the amazing things Bob […]
WHAT’S HAPPENING AT APDA? Dr. Gilbert Hosts: Genetics and PD With Dr. Clemens Scherzer Genetic mutations, genetic testing, genetic research — it’s fascinating stuff! Dr. Clemens Scherzer recently sat down with Dr. Rebecca Gilbert for an episode of Dr. Gilbert Hosts to discuss genetics and PD ― but don’t worry if you missed it! You […]
Abbott, one of the manufacturers of deep brain stimulation (DBS) devices for Parkinson’s disease (PD) recently released NeuroSphereTM Virtual Clinic, a technology that allows for virtual visits between patients and their DBS neurologist and is the first system to allow for remote programming of the DBS device. Currently, a device can be programmed so that […]
Welcome to our Resource Library. HELPFUL TIPS: Top Picks Dr. Gilbert Hosts: Parkinson’s Disease and the Gut Parkinson’s Disease Handbook Questions to ask your doctor when you are first diagnosed with Parkinson’s disease Café con la doctora: ¡Pregúntele a la doctora todo sobre la EP! We Are Here For You Mantente Activo y Aumenta tu […]
An Inside Look at Parkinson’s Disease Care Partners Being a care partner for someone with Parkinson’s disease (PD) can be a difficult, but potentially very rewarding role. Making it even more challenging is the fact that the role is assigned without consent of the care partner, without any training and without the option of refusal. […]
KEEPING IN TOUCH ONLINE Virtual events have been a great source of information and activity as we all work to adhere to various health regulations and social distancing guidelines. For APDA, keeping people with PD and their families connected, motivated, and informed has been a top priority. As a result, APDA has created many virtual […]
What does it mean to be a Parksinon’s disease care partner? Being a care partner for someone with Parkinson’s disease (PD) is a whirlwind of challenges, responsibilities, setbacks and victories. It is a very difficult, but potentially very rewarding role. Knowing that many of you reading this are trying to navigate the complexities of being […]
