Promising results from the University of Pittsburgh APDA Center for Advanced Research Posted on October 24, 2019October 24, 2019 by Phil Franchina Promising results from the University of Pittsburgh APDA Center for Advanced Research Building off of pivotal APDA-funded work highlighted here, Dr. J. Timothy Greenamyre and his team, published a investigating the role of Leucine-rich Repeat Kinase (LRRK2) in the development of Parkinson’s disease (PD). LRRK2 is known to be mutated in a small percentage of […] Read More
What’s Happening at APDA Posted on October 1, 2019October 9, 2019 by Phil Franchina What’s Happening at APDA Golfing in St. Louis – Our Greater St. Louis Chapter hosted a sold-out golf tournament in May – the 21st Annual APDA Gold Classic in Memory of Jack Buck. In addition to 18 holes, guests enjoyed dinner, a live auction, and a special talk with St. Louis Cardinals President of Baseball […] Read More
Ask the Doctor/Q&A Posted on October 1, 2019October 9, 2019 by Phil Franchina Ask the Doctor/Q&A How much control does a person with Parkinson’s have over his/her symptoms? One of the key observations with movement in PD, which can be baffling for onlookers, is that automatic movements are affected. When a person with PD concentrates on their movements they are often able to make them more normal-appearing than […] Read More
A NEW WAY TO HAVE A LASTING IMPACT Posted on October 1, 2019October 8, 2019 by Phil Franchina A NEW WAY TO HAVE A LASTING IMPACT What will your legacy be? One of the most powerful ways to ensure continued education, support, and research for people living with PD for years to come is through a gift in your estate plan. Creating a will can feel like a daunting task, but APDA has […] Read More
CLINICAL TRIAL ANNOUNCEMENT Posted on October 1, 2019October 16, 2019 by Phil Franchina CLINICAL TRIAL ANNOUNCEMENT: An Experimental, One-Time Gene Therapy for Parkinson’s Disease If your response to Parkinson’s disease medications has become unpredictable or isn’t what it used to be, this clinical study may be an option that you should discuss with your doctor. The RESTORE-1 Clinical Study is evaluating an experimental, one-time gene therapy approach to […] Read More
Research Updates Posted on October 1, 2019October 16, 2019 by Phil Franchina Research Updates In September, APDA announced funding for cutting-edge research projects for the 2019-2020 academic year totaling $1.7 million. These grants, along with others that were submitted, were reviewed earlier this year by APDA’s Scientific Advisory Board (SAB). The annual SAB meeting is also a time to hear updates on previously-funded research. David Standaert, MD, […] Read More
APDA GATHERS WITH GLOBAL PD COMMUNITY Posted on October 1, 2019October 16, 2019 by Phil Franchina 2019 World Parkinson Congress Highlights: A world away, but so close together No matter where we find ourselves – at home in our headquarters office in New York, at one of our APDA Chapter events in Oklahoma or Wisconsin, at an industry event in California, or all the way across the globe at the World Parkinson […] Read More
Coloring outside the lines of traditional PD therapies Posted on October 1, 2019October 8, 2019 by Phil Franchina Coloring outside the lines of traditional PD therapies New Program Offers Creative Outlet, Improves PD Symptoms An innovative new program offers a host of benefits for people with Parkinson’s who have challenges in visual perception and spatial relations, affecting their ability to move through the world. Most current PD treatment regimens don’t focus on this […] Read More
Creating Connections Posted on October 1, 2019October 16, 2019 by Phil Franchina Creating Connections Beyond the Doctor’s Visit: Taking Parkinson’s Care to the Next Level “Game changing.” That’s how Robin Kornhaber, Senior Vice President, National Programs and Partnerships at the American Parkinson Disease Association (APDA), describes APDA Information and Referral (I&R) Centers. APDA I&R Centers are at medical institutions across the country where APDA supports either […] Read More
Taking Parkinson’s education to the farmers market: educating under-served communities Posted on September 16, 2019September 16, 2019 by Phil Franchina Taking Parkinson’s education to the farmers market: educating under-served communities Dr. Lynda Nwabuobi, Movement Disorder Fellow at Columbia Presbyterian Medical Center in New York City, attended APDA’s Diversity in Parkinson’s Disease (PD) Research Conference in May and was inspired. Dr. Nwabuobi had just spent the day learning about health care disparities in PD care, low […] Read More
