Dr. Gilbert Hosts: PD in the Black and African American Community

On this special episode of Dr. Gilbert Hosts, you will meet an inspiring group of people with PD and care partners, who are working to bring hope and community to Black and African American individuals with Parkinson’s disease (PD). We will talk together about a wide variety of issues that concern PD and people of color including challenges with diagnosis, clinical care, living well, research participation, and more. They are ready to share their perspectives and answer YOUR questions live!

This group, called the PD Movers, developed an educational guide designed specifically for the Black and African American community. This beautiful storybook The PD Movers – We Keep Moving is a compilation of narratives of those living and thriving with PD.

Watch the broadcast now on APDA’s YouTube Channel and be sure to subscribe to the APDA YouTube channel for more informative and important resources for Parkinson’s disease.

ABOUT OUR SPEAKERS

Bernard Coley is an executive with 50+ years of experience in the high-technology industry. He is also a Principal at Enable Your Vision, a firm that provides supplier diversity consulting to drive economic vitality for diverse businesses, corporations, and the communities in which they reside. He is an experienced President & CEO with a demonstrated history of working in the information services, software development, and internet industry. He is skilled in Management Consulting, High Tech Management, Nonprofit Organization Leadership, Strategic Planning, Strategy, Public Speaking, Financial Systems, and Fundraising. He is a business development professional with an AB in Applied Mathematics from Harvard University, an MBA from Stanford Business School, and a Doctor of Law (JD) from Stanford University Law School. He is an inventor and patent holder of the Time Sensitive Scheduling Data Delivery Network Patent. Mr. Coley has been a delegate on numerous international trade missions: China (2), Australia (14), UK (2), South Africa (2) & Canada. Mr. Coley has received Distinguished Service Awards recognizing management leadership, community leadership, and service contributions to his local community, Stanford University, and youth sports. He has served on many boards in senior leadership roles. He has a long career of volunteer work including community development projects, supporting the arts, youth development, business leadership development, and facilitating/mentoring entrepreneurial development in underserved and indigenous communities. He is also an experienced facilitator and mediator. Currently, Mr. Coley is aiming his talents and time to support those interested in improving the lives of individuals and families impacted by Parkinson’s disease. He is a member of the Parkinson’s Foundation’s Research Advocates group and an Advisory Board member of the CA Chapter of the Parkinson’s Foundation. And finally, he is joining his wife Denise in an outreach initiative to increase awareness of PD and PD resources in underserved communities of color. They co-chair a special interest group focused on bringing Black perspectives to PD research.

Denise Coley is the Founder of Enable Your Vision, a firm that provides supplier diversity consulting to drive economic vitality for diverse businesses, corporations, and the communities in which they reside. For more than two decades, her leadership and vision had and continue to have a significant impact on the world’s global supplier diversity business development activities, but also those of the national and international supplier diversity communities. The supplier diversity communities benefited through her leadership, advocacy, mentorships, and programming all aimed at growing and sustaining their businesses. Denise has served on national and international boards throughout her career. She is a Parkinson’s Advocate focused on increasing Parkinson’s awareness and resources to under-engaged and remote global communities. She served on the Parkinson’s Foundation, People with Parkinson’s Advisory Council, and is a member of the Parkinson’s Foundation’s Research Advocates. Denise is an Advisory Board member of the Parkinson’s Foundation, CA Region Council, and serves as the Mission and Outreach Chair. Denise serves on the World Parkinson Coalition, Engaging People with Parkinson’s in Clinical Research committee, and is a member of the PD Avengers, Wellness Committee. Denise joins her husband Bernard in an outreach initiative to increase awareness of PD and PD resources in under-engaged communities. They co-chair a special interest group focused on bringing Black perspectives to Parkinson’s disease research.

Anita Parker is a licensed social worker and serves as the Community Outreach Director of St. Luke A.M.E. Church in New York City. She is a community partner to the research team and a staunch advocate for bringing resources to NYC Black and Hispanic communities.

Dr. Lori Quinn is Professor in the Department of Biobehavioral Sciences at Teachers College, Columbia University, and holds joint appointments as Adjunct Associate Professor in Rehabilitation and Regenerative Medicine (Physical Therapy) at Columbia University Medical Center. Dr. Quinn is a research physical therapist and is the director of the Neurorehabilitation Research Lab at Teachers College. She is the principal investigator of several ongoing clinical trials of exercise and physical activity interventions in people with Parkinson’s disease.

 

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