Lewy Body caregiver support group

Lewy Body caregiver support groups

Lewy body dementia is a progressive neurological disorder.  LBD is an umbrella term for two related diagnoses – Parkinson’s disease dementia (PDD) and dementia with Lewy bodies (DLB). The earliest symptoms of these two diseases differ, but reflect the same underlying biological changes in the brain. Over time, people with both diagnoses will develop very similar cognitive, physical, sleep, and behavioral symptoms.

Unlike Alzheimer’s disease, which has clearly defined stages, LBD progression is much less predictable. Symptoms often appear in varying combinations and severity, making each person’s experience unique.

Disabling diseases like LBD affect not only the individual diagnosed with the illness, but also caregivers, families, and friends. Caregiver support groups allow the families and friends of people with LBD to compare their experiences in caring for loved ones.

Please note: Support groups change periodically. Before attending a support group for the first time, please get in touch the person listed as the contact. We do our best to keep this list current, but appreciate it when people volunteer updates to this web page.

Beloit / Janesville

American Red Cross, 211 North Parker Drive, Janesville, WI
2nd Thursday at 10am
Contact: Julie Seeman or Paulette Steinke 608-758-8455

Sun Valley Presbyterian Church, 1650 Sun Valley Drive, Beloit WI 53511
2nd and 4th Tuesday at 1-2:30pm
Contact: Cori Marsh 608-741-3615


Columbus Community Hospital, Emerald Room, 1515 Park Avenue, Columbus, WI
2nd Thursday at 10am
Contact: Janet Wiegel at 608-742-9055

Sacred Heart Hospital, Conference Room #15, 900 West Clairemont Avenue, Columbus, WI
2nd Wednesday at 6-8pm Contact: Amy Lokken 715-379-3148
3rd Tuesday at 1-3pm Contact: Tyler Bowe 715-559-4324


Edgerton Hospital, 313 Stoughton Road, Edgerton, WI – Classroom near the cafeteria
3rd Wednesday at 1pm
Contact: Tammy Pence 608-314-8500

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